The Struggle Babe

Anyone have that one drunken uncle that stumbles home at 3 am looking like a newborn fawn? Well my legs were absolutely that guy in a past life, though my Dr calls it Episodic Ataxia. It's Feb 28th  Rare Disease Day and while I have a few rare conditions I could talk about, I wanted to take a few moments to talk about Episodic Ataxia. I've spent the last 10+ years in the online chronic illness community and until being diagnosed last October Id never even heard of Ataxia, nobody seemed to be talking about it. Because its rare and definitely needs some awareness. I now know there are many types of Ataxia, its a genetic disorder that effects your central nervous system. Causing poor coordination, balance issues, dizziness, slurred speech and more. There is currently no cure but there are a few treatment options. I was diagnosed in 2018 but have been struggling for years with this "Drunken sailor" situation, at first thinking I was just clumsy which I hav...

Ive had some serious writers block weighing me down, like a concrete cinderblock around my neck. Its been months since I've written anything other then To Do lists that all manage to including writing as a task. How annoying to have all these unfinished to do lists. Thanks writers block and thanks stubborn brain that thinks its funny to put write on my to do list over and over again. I published my last post here in November just hours before my husband and I would get into a pretty life changing auto accident, in almost cosmic ironic fashion that post was about routine and learning to embrace it where it may improve your mental and physical health. Then BAM just like that my routine was gone as were my words and my will to write.  I'm not alone in this one either, my husband was writing prior to the wreck and after it both our words were replaced with images of the world spinning in slow motion, headlights coming at us in the dark and worries how we were going to get...